National Resources
Resources available nationally within the USA or internationally
Please place a resource addition request if you would like your organizational information included
Please place a resource addition request if you would like your organizational information included
Feeding
Oley Foundation
Enriches the lives of those requiring home intravenous and tube feeding through education, outreach, and networking.
Feeding Matters
Brings pediatric feeding struggles to the forefront so infants and children are identified early, families' voices are heard, and medical professionals are equipped to deliver collaborative care.
La Leche League
Supports mothers worldwide to breastfeed through mother-to-mother support, encouragement, information, and education.
Women, Infants and Children (WIC)
Provides Federal grants to States for supplemental foods, health care referrals, and nutrition education for low-income pregnant, breastfeeding, and non-breastfeeding postpartum women, and to infants and children up to age five who are found to be at nutritional risk.
GI Kids
Provides easy to understand information about the treatment and management of these pediatric digestive conditions for children and parents.
Hand to Hold
Provides comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs and those who have experienced a loss due to these or other complications.
United States Breastfeeding Committe (USBC)
The mission of USBC is to improve the Nation's health by working collaboratively to protect, promote, and support breastfeeding.
Multiples
Twinstuff
One of the largest online sites devoted to multiples and has been managed since its creation in 1998 by identical twin brothers Craig and Mark Sanders
Kids Health / Multiples
Provides an overview of parenting multiples, and all of the unique challenges which come with this experience
Mother’s of Super Twins
MOST's mission is to advocate for quality prenatal care, promote healthy deliveries, and supply information to all multiple birth families in order to support successful parenting through every phase of their children's development
Multiples of America
Founded in 1960 as a support group for parents of multiples and as a national network for local clubs. In partnering with local support groups, health care providers, researchers, and educators, and with the highest standards of integrity, respect, and professionalism, we endeavor to aid parents of multiples, caregivers, and family members and to raise public awareness of the unique qualities of multiple birth families.
While in the NICU
Peek-a-boo ICU
Created by a NICU RN, this site strives to empower the ICU parent with an online forum as well as provides information and resources to parents and family members
Caring Bridge
Free patient websites that allows you to keep family updates during a serious health event
Kids Health
Common reasons for a NICU stay, conditions, what causes them, how they're diagnosed, and how they're treated
Kids Health / NICU
For when your baby’s in the NICU
Kids Health / Health Issues
For when your baby is born with a health problem
Maryville University - Postpartum Depression
Article describing Postpartum Depression, and support resources.
Photographing Your Baby in the NICU
A helpful article that gives tips on photographing your child in the NICU.
Postpartum Support International
An organization that is dedicated to helping women suffering from perinatal mood and anxiety disorders, including postpartum depression, the most common complication of childbirth.
Ronald McDonald House Charities
A foundation that provides a “home-away-from-home” for families so they can stay close by their hospitalized child at little or no cost.
Family Care Notebook (Levine Children's Hospital)
Share Your Story
The Parent to Parent section was created for Share Your Story community members to ask questions, raise concerns, and lend some advice about parenting a premature baby, a baby with a birth defect or talk about issues pertaining to pregnancy and infant loss.
Graham's Foundation
Our vision is a world where no parent goes through the experience of prematurity alone.
Carter's Cause
Carter's Cause is on a mission to provide resources and support to parents living the NICU journey, parents grieving from infant loss, as well as the family and friends who form their support group.
NICU Helping Hands
NICU Helping Hands provides parent support and education for families before, during and after a NICU stay and in the event of an infant death.
Hand to Hold
Provides comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs and those who have experienced a loss due to these or other complications.
Postpartum Depression
Provides the latest up-to-date information and free resources for families in danger and at risk.
The Colette Louise Tisdahl Foundation
Providing financial assistance to families in crisis due to one or more of the following: (1) pregnancy complications, (2) premature birth/NICU stay, (3) pregnancy loss, miscarriage, stillbirth, and infant loss up to age one.
Might Little Giants
Mighty Little Giants (MLG), a National 501(c)(3) non-profit organization that advocates through providing support, education and hope for mothers and fathers experiencing pre-term deliveries resulting in long-term stays in the hospitals’ NICU.
The NICU Translator
Helping bridge the gap between the NICU and home through education, community and virtual post-NICU doula support.
After the NICU
EFMP + Special Needs
Support for military families with special needs family members is provided through the Exceptional Family Member Program (EFMP).
Academic Accommodations for Students with Learning Disabilities
You Are So Much More
The book You Are So Much More was written as a reflection of the author's lived experience to remind children going through an illness, whether acute or chronic, that their condition does not define them, and they are in fact SO much more.
