Project Sweet Peas
  • Home
  • About
    • Mission
    • History
    • Contact Us
    • Connect With Us!
    • Staff & Board
    • Financials
  • Locations
    • Alabama
    • Charlottesville, Virginia
    • Greater Philadelphia Area
    • Delaware
    • Glendale, Arizona
    • Greater Lafayette
    • Greater Pittsburgh
    • Kansas
    • Morristown, New Jersey
    • New Hampshire
    • New York
    • Northeast Georgia
    • Southern Illinois
    • Southern New England
    • Terre Haute, Indiana
  • GIVE
    • Make a Gift
    • Match Your Gift
    • Host a Fundraiser
    • Cards for NICU Families
    • Volunteer
    • Scent Hearts
    • Books for Babies
    • Baby Hats
    • NICU Friendly Costumes
  • NICU Support
    • NICU Awareness Month
    • Care Packages
    • NICU Journaling Workshop
    • Food & Fuel Assistance
    • NICU Grad
    • Milestones
    • Facebook Forum
    • Mental Health Worksheets
    • Other Resources >
      • Regional Resources
      • National Resources
      • Disorder Resources
      • For Health Professionals
  • Bereavement Support
    • Memory Boxes
    • We Remember
    • Write Your Grief
    • Luminary Vigils
    • Other Resources
    • Hospital Memory Box Orders
  • Sweet 16 Celebration
  • NEWS & EVENTS
    • In the News
    • Casino Night Gala
  • Shop
  • Home
  • About
    • Mission
    • History
    • Contact Us
    • Connect With Us!
    • Staff & Board
    • Financials
  • Locations
    • Alabama
    • Charlottesville, Virginia
    • Greater Philadelphia Area
    • Delaware
    • Glendale, Arizona
    • Greater Lafayette
    • Greater Pittsburgh
    • Kansas
    • Morristown, New Jersey
    • New Hampshire
    • New York
    • Northeast Georgia
    • Southern Illinois
    • Southern New England
    • Terre Haute, Indiana
  • GIVE
    • Make a Gift
    • Match Your Gift
    • Host a Fundraiser
    • Cards for NICU Families
    • Volunteer
    • Scent Hearts
    • Books for Babies
    • Baby Hats
    • NICU Friendly Costumes
  • NICU Support
    • NICU Awareness Month
    • Care Packages
    • NICU Journaling Workshop
    • Food & Fuel Assistance
    • NICU Grad
    • Milestones
    • Facebook Forum
    • Mental Health Worksheets
    • Other Resources >
      • Regional Resources
      • National Resources
      • Disorder Resources
      • For Health Professionals
  • Bereavement Support
    • Memory Boxes
    • We Remember
    • Write Your Grief
    • Luminary Vigils
    • Other Resources
    • Hospital Memory Box Orders
  • Sweet 16 Celebration
  • NEWS & EVENTS
    • In the News
    • Casino Night Gala
  • Shop

Disorder Resources

Locate resources for disorders that can lead to or prolong a NICU stay
Please place a resource addition request if you would like your organizational information included
​
Kids Health / Birth Defects 
Information about the causes of, and treatment for various birth defects

Rare Share  
A unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders


Birth Defect Research for Children 
Provides parents and expectant parents with information about birth defects and support services for their children. 

Anencephaly
AnencephalyInfo.Org  
Contains many links to various sites which offer anencephaly support information, as well as grief support resources

Autism
Sesame Street and Autism  
Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to overcome common challenges and simplify everyday activities. 
​
Cerebral Palsy
Cerebral Palsy Foundation
C
ommitted to serving the needs of children internationally with Cerebral Palsy, their families, and the care givers involved in their care.

Clubfoot
Clubfoot Club  
Information & support resources for those born with clubfeet  

Congenital Heart Defects
Mended Little Hearts 
A support program for parents of children with heart defects and heart disease

Congenital Heart Defects 
Provides a variety of information and support links

Kids Health / CHD 
Overview & treatment options

Gastroschisis
Gastroschisis  
Provides information regarding the prenatal diagnosis and treatment 

Avery's Angels 
Provides information about the disease, treating hospitals, state and national stats, procedures and FAQ's

Hydranencephaly
Rays of Sunshine Hydranencephaly Information and support
A voluntary organization whose purpose is to provide information and support to families of children who have hydranencephaly. 

Hypoxic Ischemic Encephalopathy
Hope for HIE 
A premier resource for families whose children have been diagnosed with hypoxic ischemic encephalopathy (HIE).  

Marfan Syndrome
Kids Health / Marfan Syndrome  
Overview about Marfan Syndrome, it’s causes, & treatment plans

Omphalocele
Omphalocele  
Provides information regarding the prenatal diagnosis and treatment following birth 

Osteogenesis Imperfecta
The OI Foundation
The OI Foundation has a mission to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support.

Prader-Willie Syndrome
Prader-Willie Syndrome Association   
An organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willie Syndrome 

Spina Bifida Association
Spina Bifida Association  
Serves adults and children who live with the challenges of Spina Bifida.  Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect.  Its tools are education, advocacy, research, and service 

Trisomy
S.O.F.T.  
Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) is a nonprofit volunteer organization offering support for parents who have had or are expecting a child with a chromosome disorder (especially Trisomy 18 and Trisomy 13), and education to families and professionals interested in the care of these children 

Trisomy Online  
Trisomy Online is a free email based support group that was formed in 1997 for families and professionals whose lives have been touched by the diagnosis of a trisomy condition 

Noah's Never Ending Rainbow  
Mission is to educate, advocate, raise public awareness, promote strategic alliances and assist families who have children with Trisomy and related chromosome disorders 

Trisomy 18  
Mission is to encourage the search for treatments and preventions of Trisomy 18, to educate and support medical professionals, and to create a caring worldwide community for affected families

Spinal Muscular Atrophy
FightSMA 
An international nonprofit organization dedicated to a treatment or cure for Spinal Muscular Atrophy (SMA), the leading inherited cause of infant death.

Prematurity

Prematurity.Org  
Preemie Parent Support

Kids Health / Prematurity  
A Primer on Preemies in the NICU 

Preemie Babies 101 
A parent blog inspired by the many diverse experiences that are common to parents of preemies.

The Preemie Primer  
A complete guide for parents of premature babies--from birth through the toddler years and beyond

National Premature Infant Health Coalition 
 A collaborative of professional, clinical, community health, and family support organizations focused on improving the lives of premature infants and their families.

Preemie Proud  
A store that caters exclusively to premature babies (preemie) and low birth weight infants through various stages of development – from in the NICU to going home  

Preemie Help  
Providing resources and information for parents, friends, family, and experts interested in, or affected by, premature birth 


NICU Helping Hands 
A foundation that develops hospital and community-based projects that provide education and support to families of premature infants.


It’s a Preemie Thing 
Offers specialty NICU clothing and merchandise.

Breastfeeding Premature Infants 
A collection of reprinted material from La Leche League offering breastfeeding advice and support to parents of premature infants.

Preemie Babies 101 
A parent blog inspired by the many diverse experiences that are common to parents of preemies.

Preemies Today 
A national preemies support network that provides a meaningful connection for preemies families both in the NICU and beyond by enabling them to meet others families whose lives have been affected by premature birth.

National Premature Infant Health Coalition 
 A collaborative of professional, clinical, community health, and family support organizations focused on improving the lives of premature infants and their families.


Graham's Foundation 
Graham’s Foundation empowers parents of premature babies through support, advocacy and research to improve outcomes for their preemies and themselves. In addition to care package programs, they have trained parent mentors available 

Early Bloomers 
Helps families with the challenges of caring for their early babies.

Baby First
​
Providing educational resources and support to caregivers and parents of premature infants.

Complications
Little Bear Sees 
Strives to provide the information and tools necessary for helping children with CVI learn how to see. 


NEC Society 
A diverse group of healthcare practitioners, researchers, and families from across the country who seek to protect premature infants from necrotizing enterocolitis.

Speaking of NEC
Produced by The Morgan Leary Vaughan Fund, and funded by The Petit Family Foundation, Speaking of NEC is a series of one-on-one conversations with relevant NEC experts—neonatologists, clinicians and researchers—that highlights current prevention, diagnosis, and treatment strategies for NEC, and the search for a cure.

The Cord Blood Center 
​
P
rovides you and your family with relevant information on cord blood, banking options and emerging research, so you can make the best decision possible for your family. 

The Morgan Leary Vaughan Fund
The Morgan Leary Vaughan Fund (Morgan's Fund) provides information and awareness about NEC

The Natural History Registry for Necrotizing Enterocolitis (NEC Registry) 
A collaborative effort between The Morgan Leary Vaughan Fund (Morgan’s Fund) and the National Organization for Rare Disorders (NORD) to study Necrotizing Enterocolitis (NEC).
​
Project Sweet Peas is a registered 501(c)3 nonprofit organization incorporated in the state of Pennsylvania. FEIN # 273679594


Related Websites:
www.nicuawareness.org
Picture
Make a Gift
Mission
History
Board of Directors
Division Listings
Giving
Picture
Copyright © 2024 | Project Sweet Peas | [email protected]
Mailing Address: 
45 Boylston St, Warwick, RI 02889
Physical Address: 860 West Shore Road, Warwick, RI 02889